Rare, but not alone!
Together for
find a cure
Since 2015, we've helped more than 20,000 women and girls find a voice again.
GABRB3Life Changes ODV was born with the aim offind therapy for our childrenaffected by the GABRB3 mutation. Currently, there is no cure for this genetic condition and our children have to deal with supportive care to deal with daily difficulties.
However,we do not give up and continue to look for new solutions to advance research in this field.
Even if we are few, we are committed to making our voice heard earaise awareness of the importance of researchto find a permanent cure.
Our mission is to find a cure to improve the quality of life of our children, giving them the opportunity to walk, eat and lead a life as normal as possible. We are also dedicated toknowledge promotionand awareness of rare diseases, especially the GABRB3 mutation, foroffer support and hope to families and to patients facing this disease. By spreading information and learning about diagnosis, management and treatment, we hope to make a difference in the lives of our children.
