Rare, but not alone!
Together we
can find a cure
GABRB3 Life Changes ODV is a patient organization that promotes research and awareness about the GABRB3 genetic mutation to find a cure and improve the lives of patients and their families.
GABRB3 Life Changes ODV was born with the aim of find therapy for our children affected by the GABRB3 mutation. Currently, there is no cure for this genetic condition and our children have to deal with supportive care to deal with daily difficulties.
However,we do not give up and continue to look for new solutions to advance research in this field.
Even if we are few, we are committed to making our voice heard earaise awareness of the importance of researchto find a permanent cure.
Our mission is to find a cure to improve the quality of life of our children, giving them the opportunity to walk, eat and lead a life as normal as possible. We are also dedicated toknowledge promotionand awareness of rare diseases, especially the GABRB3 mutation, foroffer support and hope to families and to patients facing this disease. By spreading information and learning about diagnosis, management and treatment, we hope to make a difference in the lives of our children.